Opublikowano 29 wrzesień, 2015 |
przez Pioter Szëca
Potrzebna pomoc dla chorej 6-letniej Julki
Dziewczynka choruje na mukopolisaharydozę typu III B Sanfilippo. W ciągu najbliższych 10 lat choroba odbierze jej stopniowo wzrok, słuch, możliwość chodzenia, jedzenia i na końcu oddychania.
– W akcję pomocową włączyła się społeczność szkolna, mieszkańcy Przodkowa oraz samorząd gminny – mówi wójt Andrzej Wyrzykowski.
Dziewczynka powoli umiera, dlatego w najbliższą niedzielę będzie zorganizowany festyn charytatywny, podczas którego będzie można finansowo wesprzeć rodziców Julki. Badania i leki nie są refundowane przez NFZ, a są bardzo drogie. Pozwolą one częściowo zahamować rozwój choroby. Festyn rozpocznie się w najbliższą niedzielę o godzinie 14.00 w hali widowiskowo – sportowej w Przodkowie. Wystąpi między innymi Przodkowska Orkiestra Dęta i Młodzieżowa Orkiestra Dęta z Łapalic. Na zakończenie przewidziano występ disco – polowej gwiazdy, zespołu Fanatic.
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